Dylan Lee James Act

The Dylan Lee James Act (H.R. 1443) proposes to expand healthcare access for families with children who have significant disabilities. The bill would allow states to let middle-income families purchase Medicaid coverage for their disabled children, even if the family’s income is too high to qualify for traditional Medicaid.

Additionally, the legislation provides funding for family-to-family health information centers and creates pilot programs to test the effectiveness of home-based alternatives to psychiatric residential treatment. For citizens, this means families would no longer have to choose between staying in poverty to maintain health benefits or losing essential medical coverage for a child with special needs.