Summary
Living Well with Fatal Chronic Illness Act - Amends title XVIII (Medicare) of the Social Security Act (SSA) to add a new part D (Purchase of Medicare Benefits by Certain Caregivers Age 55-to-65 Years of Age). Makes eligible for both part A and part B Medicare benefits during a specified period certain individuals 55 or older who are caring on a full-time basis for family members who are Medicare beneficiaries requiring substantial supervision due to severe cognitive impairment or are unable to perform at least two activities of daily living.
Directs the Secretary of Health and Human Services to determine and to provide for payment and collection of a monthly premium.
Creates in the Treasury the Medicare Caregiver Trust Fund to hold collected premiums.
Amends the Internal Revenue Code to provide an annual long-term care credit of $3000 per applicable person for whom a taxpayer is an eligible caregiver.
Requires the Secretary, acting through the Administrator of the Health Resources and Services Administration, to carry out research, demonstration, and education programs toward improving the delivery of appropriate health and support services for patients with fatal chronic illnesses.
Requires the Director for the Centers for Disease Control and Prevention and the Director of the National Institutes of Health to expand activities with respect to fatal chronic illness.
Requires the Secretary to develop pilot programs for the treatment for fatal chronic illness.
Directs the Secretary of Veterans Affairs to improve the delivery of appropriate treatment services to patients with fatal chronic illness under health care programs of the Department of Veterans Services.
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