ALS Better Care Act

The ALS Better Care Act (H.R. 5663) aims to improve the quality of life for individuals with amyotrophic lateral sclerosis (ALS) by expanding access to specialized, multidisciplinary care. The bill would create a new supplemental Medicare payment—proposed at $800 per visit—to help clinics cover the high costs of providing coordinated care from teams of neurologists, physical therapists, social workers, and other specialists in a single visit.

By providing this additional funding, the legislation seeks to reduce patient wait times, eliminate out-of-pocket costs for integrated services, and ensure that these specialized clinics remain financially sustainable. For patients and their families, the bill’s practical impact would be more streamlined medical visits and better access to the comprehensive treatments proven to extend survival and improve daily functioning.