To direct the Secretary of Health and Human Services to carry out a program under which the Secretary will collect data with respect to sickle cell disease in the United States, and for other purposes.
Summary
H.R. 8067 would require the Department of Health and Human Services to implement a data collection program focused on sickle cell disease. The bill aims to gather comprehensive information about this genetic blood disorder across the United States, which could help federal health officials better understand the disease's prevalence, impact, and treatment patterns.
If enacted, this data collection effort could support improved public health planning and policy decisions related to sickle cell disease. By establishing a systematic approach to gathering information about the disease, the legislation may help identify gaps in care, treatment outcomes, and health disparities. The bill is currently in the early stages of the legislative process, having been introduced in the House on March 24, 2026, and referred to committee for consideration.