Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
Summary
House Resolution 419 is a non-binding proposal that officially recognizes May as Ehlers-Danlos Syndrome (EDS) Awareness Month. The resolution aims to educate the public and healthcare providers about this group of genetic disorders, which weaken the body’s connective tissues and can lead to severe joint instability, chronic pain, and life-threatening vascular complications. By increasing national visibility, the measure seeks to improve early diagnosis rates and encourage further research into effective treatments for those living with the condition.
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Lifecycle of the Bill
Submitted in House
May 15, 2025
Submitted in House
May 15, 2025
Referred to the House Committee on Energy and Commerce.
May 15, 2025