Expressing support for the designation of June 19, 2023, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease.
Summary
House Resolution 514 is a measure that officially recognizes June 19, 2023, as World Sickle Cell Awareness Day. The resolution aims to increase public knowledge about sickle cell disease, a genetic blood disorder that affects millions of people worldwide and can cause severe pain, organ damage, and stroke. By formally designating this day, the bill encourages greater investment in medical research, expanded access to early screening for carriers, and the development of new treatments and preventative care programs to improve the quality of life for those living with the condition.