MD-CARE Act

The MD-CARE Act (S. 805) aims to expand federal research and public health efforts to combat various forms of muscular dystrophy, including Duchenne, myotonic, and facioscapulohumeral muscular dystrophy. The bill directs the National Institutes of Health to establish at least five centers of excellence for specialized research and creates a national committee to coordinate federal activities across different agencies.

For citizens and families affected by these conditions, the bill focuses on improving diagnosis and treatment by authorizing the Centers for Disease Control and Prevention to track the prevalence of the disease and provide updated medical information to the public and healthcare professionals. By centralizing data collection and funding new research facilities, the legislation seeks to accelerate the development of therapies and provide a more comprehensive support system for patients nationwide.