Sickle Cell Disease Comprehensive Care Act

The Sickle Cell Disease Comprehensive Care Act would expand Medicaid programs by allowing states to create dedicated health homes for individuals with sickle cell disease. These health homes would provide coordinated care designed to manage the complex medical needs of sickle cell patients. The bill would require that such coordinated care include dental and vision services, recognizing that comprehensive treatment involves multiple aspects of healthcare.

Under current law, states can establish health homes for certain chronic conditions, but sickle cell disease would need to be added to the list of eligible conditions. The bill would also direct the Centers for Medicare and Medicaid Services to develop best practices guidance to help states design and implement these health homes effectively. If enacted, this could improve care coordination and access to essential services for Medicaid-eligible individuals with sickle cell disease, though the bill is currently in committee and has not yet been voted on by the full Senate.